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Winter 2010
FactorNet
Read it now - Here! |
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Word from the Director I know it is a cliché – but this is such a wonderful time of the year. In the fast paced world we are still awarded the invaluable opportunity to stop and give thanks for all the gifts that we receive.
There is not enough space here to thank everyone who works so hard making HFI successful. I have had the honor during my career to work on behalf of a number of very deserving groups of individuals, but never have I been involved with a cause where those directly impacted are so centrally committed to the mission of the organization. This is a gift which all of us in the Illinois bleeding disorder community should be tremendously proud. Our bonds are further strengthened by all those who provide care and support to us. We are blessed with committed families, excellent health care professionals and generous supporters including our pharmaceutical and home care companies. For all of this I give thanks.
This is also a time for us to reflect on our past and think about our future. It is very important that we all keep HFI and its mission dear to our heart during these trying economic times. As the recession deepens many important charities are increasingly being affected by decreased contributions. We are especially vulnerable because we are such a small group. While every one may know some with a cancer or diabetes – how many outside our community know someone with a bleeding disorder?
So what can we all do? Well – first we can give ourselves. I ask each one of you to please consider making a gift of a size that is within your means. This type of support from our own members provides vital support to HFI while also showing other corporate and philanthropic groups how important your bleeding disorder organization is to you.
We can also tell anyone and everyone about HFI and our need for support. It is amazing in these days of lightening fast technology how good old fashioned word of mouth still is one of the best communication tools. Taking the few minutes to tell your own story can mean so much to us. In particular, I ask each of you to reach out to your churches and local civic organizations. These groups are always looking for someone to make a presentation and often provide support that we have not tapped into for HFI. Please let me know how our staff can help you. We can provide you with letters, materials and even help with your talking points.
As always - thank you for everything that you do for our bleeding disorder community. Enjoy the holidays!
Bob Robinson, Executive Director
Read Laurie Kelley's new blog! Laurie is the mother of a child with hemophilia, and founded LA Kelley Communications, Inc. in 1990 to provide practical educational materials for families. |
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Hemophilia Emergency Care
Atencion de Emergencia para la Hemofilia
www.hemophiliaemergencycare.com A site designed to assist you when seeking care in emergency rooms or treatment facilities aside from your Hemophilia Treatment Center. |
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