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BLEEDING DISORDERS

A
LLIANCE ILLINOIS

 

 
 
 

The Bleeding Disorders Alliance Illinois is an organization dedicated to improving the quality of life for persons affected by hemophilia and other inherited bleeding disorders, and complications of these disorders or their treatment.

 

The Bleeding Disorders Alliance Illinois provides and promotes Advocacy, Consumer Services, Education and Research. We are a not-for-profit 501(c)(3) organization and members of the National Hemophilia Foundation, the Hemophilia Federation of America, and Community Health Charities.

 

Camping Season is Coming!
 

Go to the events page on this web site to check out the upcoming Marcus McClure Family Camping Weekend on May 16 - 18.  This is the opportunity for new campers - age 6 -10 - and their families to spend a weekend with us and learn about Camp Warren Jyrch.  Also, keep watching here for the camper and staff applications for this summer's session - August 3 - 9.

 


 

NEWLY DIAGNOSED?
 

Were you or a family member just diagnosed with a bleeding disorder?  We can help, Click here to learn how!

 

 


BIG THANKS TO ALL!

 

Last weekend nearly 250 members of the Illinois bleeding disorders community family came together for the Annual Statewide Education & Fun Weekend.  Everyone enjoyed a Saturday packed full of educational trainings.  The day was ended with several hours in the water park and then ended the day with a pizza party.  A big thanks to all of our sponsors for making this special activity possible again this year. 

 

COALITION WORKING ON CO-PAYS

 

One of the negative consequences we are seeing as a result of health care reform is that insurance companies have increased co-payments for many medicines by adding a ‘specialty tier’, a fourth category of medicines. Medications on this specialty tier are needed for life threatening or debilitating diseases and can cost a patient between 25-50% of the drug’s total cost each month, causing people living with chronic illnesses like cancer, arthritis, blood diseases, epilepsy, HIV and others to pay hundreds, even thousands, of dollars a month.

 

BDAI has joined a coalition to educate legislators about how this is adversely affect people with chronic illnesses.  We are encouraging our community to get involved in this effort.  You can do this by simply logging on to www.capthecopay.org

You can register to get up-to-date information and also share your stories. 

 

 

NEW OPPORTUNITY TO HELP BDAI
 

We have been offered a unique opportunity to partner with a Chicago-based medical research company. For every person who registers with MedQuery, BDAI  will receive a $45 donation. Once you become a MedQuery Panel Member you will receive regular invites to participate in a variety of market research projects typically sponsored by the drug manufacturers.

 

Payment amounts vary by project but typically you can earn $100 for an hour providing thoughts and opinions about about your experiences managing your bleeding disorder. Your enrollment will be strictly limited to invitations for market research.  No marketing of any kind will occur and your contact information will not be used for any other purposes.  

http://www.medqueryinc.com/start
invite code 2269


 


 

 

 

        

 

Read Laurie Kelley's new blog!

Laurie is the mother of a child with hemophilia, and founded LA Kelley Communications, Inc. in 1990 to provide practical educational materials for families.

 

Novel Approaches to
Bleeding Disorder Treatment

Health Insurance Reform

Bad Blood Documentary Article from PEN

 

Hemophilia Emergency Care

 

Atencion de Emergencia para la Hemofilia

 

A site designed to assist you when seeking care in emergency rooms or treatment facilities aside from your Hemophilia Treatment Center. www.hemophiliaemergencycare.com

210 S. DesPlaines St.
Chicago, IL 60661-5500

Telephone: 312.427.1495
Fax: 312.427.1602
E-mail:
info@bdai.org

 
If you have suggestions for improvements,
email us at:
info@bdai.org

By clicking on the links to the left, you will be taken off the BDAI website and as such, BDAI cannot be responsible for the content.

 

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