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The Bleeding Disorders Alliance Illinois (BDAI) supports families affected by inherited bleeding disorders such as Hemophilia and von Willebrand disease by providing its members with the unbiased medical information and resources that allow them to live a healthy and active lifestyle. This neutral information is especially important for families seeking answers and support soon after the initial diagnosis.

BDAI also fosters a welcoming community for families to meet, interact and share information and advice. Through education and support, BDAI helps its members advocate on their own behalf with public and private insurance providers, medical services and government agencies, while representing the bleeding community in the world at large.

 

Newly Diagnosed?
 

Were you or a family member just diagnosed with a bleeding disorder?  We can help, Click here to learn how!

 

 

Camping Season is Here

Go to the events page on this web site to check out the upcoming Marcus McClure Family Camping Weekend on May 16 - 18.  This is the opportunity for new campers - age 6 -10 - and their families to spend a weekend with us and learn about Camp Warren Jyrch. 

Also, here are the camper and staff applications for Camp Warren Jyrch - August 3 - 9.

Camper Application

Staff Application

 

Coalition Working on Co-Pays

One of the negative consequences we are seeing as a result of health care reform is that insurance companies have increased co-payments for many medicines by adding a "specialty tier," a fourth category of medicines.  Medications on this specialty tier are needed for life threatening or debilitating diseases and can cost a patient between 25-50% of the drug's total cost each month, causing people living with chronic illnesses like hemophilia to pay thousands out-of-pocket.

BDAI has joined a coalition to educate legislators about how this is adversely affecting people with chronic illnesses.  We are encouraging our community to get involved in this effort.  You can do this by simply logging on to www.capthecopay.org.    You can register to get up-to-date information and also share your stories. 

New Opportunity to Help You & BDAI

 

We have been offered a unique opportunity to partner with a Chicago-based medical research company. For every person who registers with MedQuery, BDAI  will receive a $45 donation.Once you become a MedQuery Panel Member you will receive regular invites to participate in a variety of market research projects typically sponsored by the drug manufacturers.

 

Payment amounts vary by project but typically you can earn $100 for an hour providing thoughts and opinions about about your experiences managing your bleeding disorder. Your enrollment will be strictly limited to invitations for market research.  No marketing of any kind will occur and your contact information will not be used for any other purposes.  

http://www.medqueryinc.com/start
invite code 2269


 


 

 

210 S. DesPlaines St.
Chicago, IL 60661-5500

Telephone: 312.427.1495
Fax: 312.427.1602
E-mail:
info@bdai.org

 
If you have suggestions for improvements,
email us at:
info@bdai.org

By clicking on the links to the left, you will be taken off the BDAI website and as such, BDAI cannot be responsible for the content.

 

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